BDSRA Memorial
Dear BDSRA Community, As you may know, BDSRA is creating [...]
Read the latest issue of the newsletter
The latest issue of the newsletter is here! Click here [...]
BDSRA Hires New Executive Director
Dear BDSRA Community, It is my pleasure to announce that [...]
BDSRA Board of Directors
Brock Benroth is a small business owner, and the married [...]
BDSRA Executive Director
BDSRA is currently accepting applications for the position of Executive [...]
Emerging Research Conference Travel Award Winners
From left to right: Dr. Dearborn, Dr. Dang Do, [...]
Collaborations Pharmaceuticals, Inc. to partner with Washington University in St. Louis on Batten Disease
We are excited to share this research update from Collaborations [...]
BDSRA 2019 Board Nominations
The BDSRA Board of Directors has several open seats for [...]
REGENXBIO Announces Pipeline Expansion with RGX-181 Gene Therapy for CLN2 Form of Batten Disease
The expansion of Batten Disease treatment options is crucial to [...]
Sibling Highlight: Award Winning Poet Shalini Rana
In April, Shalini Rana, sibling of Shiv Rana CLN6, won third [...]
