From Bench to Bedside, Getting to an FDA Approval
It is an exciting time for Batten research! As new [...]
Batten Connect and Laps 4 Life
Margie’s trip to Manitoba started with the Batten Connect Information [...]
Family Conference Agenda
We are excited to share the tentative agenda for the [...]
February Funding Partners!
The often grey and cold winter month of February brings [...]
Volunteer Spotlight: Nationwide Insurance
BDSRA is grateful for a wonderful group of employees from [...]
Rare Disease Day Recap
BDSRA's community was very active during this year's Rare Disease [...]
2018 BDSRA Family Conference Registration is open!
Registration for the 2018 BDSRA Conference is now live! We [...]
BDSRA is now accepting letters of intent (LOI) for 2018!
Focus for 2018's Research Funding Round: Biomarkers BDSRA seeks letters [...]
Rare Disease Day
Rare Disease Week on Capitol Hill : February 25-March 1 Join advocates, [...]
The February Illuminator is here!
The latest issue of the Illuminator is here! Click here to read [...]
