June 9th is International Batten Disease Awareness Day! Our goal is to honor and support those affected by Batten disease and raise awareness.

Join us as we celebrate families around the world and raise money for research! BDSRA is hosting the 2019 International Batten Disease Awareness Day Virtual 5K on June 9th, 2019.

Click here to read more about the virtual 5k and register for the event here.