2016 BDSRA Annual Family Conference
The hotel reservation link is now closed. If you have [...]
March Issue of the Illuminator
The March issue of the BDSRA newsletter The Illuminator is [...]
Call on Congress to Pass the OPEN ACT
Last year, the OPEN ACT, legislation that could double the [...]
BioMarin Announces Positive Data for Treatment of CLN2
SAN RAFAEL, Calif., March 02, 2016 (GLOBE NEWSWIRE) -- BioMarin [...]
February Issue of the Illuminator
The February issue of the BDSRA newsletter The Illuminator is [...]
2016 Annual Membership
Show Your Strength: February is membership month for BDSRA. To [...]
January Issue of The Illuminator
The January issue of the BDSRA newsletter The Illuminator is [...]
Hudson Phillips and the Columbus Blue Jackets
Thank you to the Columbus Blue Jackets Foundation! The Phillips [...]
BDSRA Annual Family Conference
The 2016 family conference will be in St. Louis, Missouri, [...]
2015 BDSRA Annual Fund
Make your annual fund gift to BDSRA this month and [...]
