CLN2 Enzyme Replacement Trial Opens First US Site
We are very happy to announce that the first United [...]
Charlee Nelson Inspires Utah Legislation Named in Her Honor
For Catrina and Jeff Nelson, losing their 6-year-old daughter Charlee [...]
Columbus Clippers Deliver a Dream for Guest Announcer
Friday, July 25, 2014 was a memorable day for the [...]
International Partners Advance Batten Disease Research Targets
BDSRA, in collaboration with international and family foundation partners, has [...]
Grants and Patient Registry to Advance Batten Disease Research
Read more about the DEM-CHILD project that is a funding [...]
April 2014 Newsletter
BDSRA announces global research grants and programs in April Newsletter. [...]
ourboys 5k/10k
ourboys 5k/10k April 12, 2014 8:30am Harris Road Middle School [...]
Run the Creek 5K
Run the Creek 5k March 22, 2014 9:00 am Highland [...]
Get Involved and Make it Happen: February is membership month for BDSRA
To join or renew your 2014 annual membership, which is [...]
The Lysosomal Disease Network’s 10th Annual WORLDSymposium™ 2014
Please join us Monday, February 10, 2014 – Friday, February [...]
