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  • What Is Batten Disease?
    • What Is Batten Disease
    • Types of Batten Disease
    • Symptoms and Diagnosis
  • Ways to Give
    • How to Give
    • Fam Funds
      • Interest Form
    • Donor Advised Fund Giving Form
  • Support
    • Centers of Excellence
    • Annual Family Conference
      • 2025 BDSRA Annual Family Conference
    • Caregiver Resources
    • Newly Diagnosed?
    • Family Grants
    • Family and Caregiver Support
      • Parenting and Finding Emotional Support
      • Parents and Family Members as Caregivers
      • Bereaved Parents and Caregivers
      • Nuts and Bolts of Care
      • Educational Resources
    • Support for Batten Siblings
    • Join the BDSRA Community
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    • Clinical Trials & Natural History Studies Chart
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    • Research and Clinical News
  • Advocacy
    • 2025 International Batten Disease Awareness Day Toolkit
    • Advocacy Toolkit
    • Rare Disease Week
    • State and Local Initiatives
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    • Illuminator Newsletter
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    • Events
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  • Contact
  • What Is Batten Disease?
    • What Is Batten Disease
    • Types of Batten Disease
    • Symptoms and Diagnosis
  • Ways to Give
    • How to Give
    • Fam Funds
      • Interest Form
    • Donor Advised Fund Giving Form
  • Support
    • Centers of Excellence
    • Annual Family Conference
      • 2025 BDSRA Annual Family Conference
    • Caregiver Resources
    • Newly Diagnosed?
    • Family Grants
    • Family and Caregiver Support
      • Parenting and Finding Emotional Support
      • Parents and Family Members as Caregivers
      • Bereaved Parents and Caregivers
      • Nuts and Bolts of Care
      • Educational Resources
    • Support for Batten Siblings
    • Join the BDSRA Community
    • Resource Corner
  • Research
    • Global Research Initiative
      • Researcher Email List
    • Current Funded Projects
    • Centers of Excellence
    • Clinical Trials & Natural History Studies Chart
    • Family Register
    • Research and Clinical News
  • Advocacy
    • 2025 International Batten Disease Awareness Day Toolkit
    • Advocacy Toolkit
    • Rare Disease Week
    • State and Local Initiatives
    • Hometown Efforts
  • News
    • Illuminator Newsletter
    • Press and Media
    • Social Media
    • Events
  • Memorials
  • About
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Events for March 30 - August 11, 2024

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10 events found.

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  • January 2023

  • Sat 21
    January 21, 2023 @ 9:00 am - 5:00 pm

    BDSRA Board of Directors Quarterly Meeting

    BDSRA’s Quarterly Board Meeting will take place Saturday, January 21st [...]

  • February 2023

  • Wed 15
    February 15, 2023 @ 6:00 pm - 7:00 pm

    BDSRA Virtual Family Valentine’s Day Party

    Love is in the air! Join us for the BDSRA [...]

  • April 2023

  • Sun 23
    April 23, 2023 @ 5:00 pm - 7:00 pm

    BDSRA Board of Directors Quarterly Meeting

    BDSRA’s Quarterly Board Meeting will take place Sunday, April 23rd [...]

  • June 2023

  • Fri 9
    June 9, 2023 - June 11, 2023

    International Batten Disease Awareness Day/Virtual 5K

    Our goal is to honor and support those affected by [...]

  • July 2023

  • Fri 14
    July 14, 2023 - July 16, 2023

    Annual Family Conference | Denton, TX

    Visit the Family Conference Home Page

  • August 2023

  • Wed 23
    August 23, 2023 @ 6:00 pm - 7:00 pm

    Dog Days of Summer Party

    Zoom

    The summer days are hot, but hanging out with your [...]

  • October 2023

  • Mon 2
    October 2, 2023 @ 7:00 pm - 8:00 pm

    Fall Grief Chat

    Zoom

    Join the Batten community for BDSRA's Fall Grief Chat on [...]

  • Tue 24
    October 24, 2023 @ 6:00 pm - 7:00 pm

    2023 Boo Bash

    Zoom

    Grab your costumes and join us for a frightfully FUN [...]

  • November 2023

  • Thu 30
    November 30, 2023 @ 6:00 pm - 7:00 pm

    REGENXBIO Webinar

    Zoom

    Have questions on the latest news concerning REGENXBIO and its [...]

  • December 2023

  • Sun 3
    December 3, 2023

    Board of Directors Meeting

    Zoom

    The BDSRA Foundation Board of Directors will meet virtually on [...]

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