BDSRA Board of Directors Quarterly Meeting
BDSRA’s Quarterly Board Meeting will take place Sunday, April 23rd [...]
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International Batten Disease Awareness Day/Virtual 5K
Our goal is to honor and support those affected by [...]
Annual Family Conference | Denton, TX
Visit the Family Conference Home Page
Dog Days of Summer Party
ZoomThe summer days are hot, but hanging out with your [...]
Fall Grief Chat
ZoomJoin the Batten community for BDSRA's Fall Grief Chat on [...]
2023 Boo Bash
ZoomGrab your costumes and join us for a frightfully FUN [...]
REGENXBIO Webinar
ZoomHave questions on the latest news concerning REGENXBIO and its [...]
Board of Directors Meeting
ZoomThe BDSRA Foundation Board of Directors will meet virtually on [...]
2023 Research in Review Webinar
ZoomMark your calendars for Wednesday, Dec. 13 at 6 p.m. [...]
Holiday Grief Chat
Join host and bereaved Batten mother Peggy DiCapua for BDSRA's [...]
