International Batten Disease Awareness Day/Virtual 5K
Our goal is to honor and support those affected by [...]
Our goal is to honor and support those affected by [...]
Visit the Family Conference Home Page
The summer days are hot, but hanging out with your [...]
Join the Batten community for BDSRA's Fall Grief Chat on [...]
Grab your costumes and join us for a frightfully FUN [...]
Have questions on the latest news concerning REGENXBIO and its [...]
The BDSRA Foundation Board of Directors will meet virtually on [...]
Mark your calendars for Wednesday, Dec. 13 at 6 p.m. [...]
Join host and bereaved Batten mother Peggy DiCapua for BDSRA's [...]