Board of Directors Meeting
ZoomThe BDSRA Foundation Board of Directors will meet virtually on [...]
Loading view.
2023 Research in Review Webinar
ZoomMark your calendars for Wednesday, Dec. 13 at 6 p.m. [...]
Holiday Grief Chat
Join host and bereaved Batten mother Peggy DiCapua for BDSRA's [...]
CLN7 Batten Disease Research Update
ZoomElpida Therapeutics will host an open virtual meeting via Zoom [...]
SIBs Mid-Season Social
CALLING ALL BATTEN SIBS! The time has come to re-connect [...]
Valentine’s Day Party
LOVE IS IN THE AIR! It’s time to mark your [...]
Rare Disease Week on Capitol Hill
For complete information on this event, including registration, please visit [...]
Rare Disease Day at NIH
For complete information on this event, including registration, click here. [...]
Rare Disease Day at FDA
For complete information on this event, including registration, click here. "FDA [...]
