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    • What Is Batten Disease
    • Types of Batten Disease
    • Symptoms and Diagnosis
  • Ways to Give
    • How to Give
    • Fam Funds
      • Interest Form
    • Donor Advised Fund Giving Form
  • Support
    • Centers of Excellence
    • Annual Family Conference
      • 2025 BDSRA Annual Family Conference
    • Caregiver Resources
    • Newly Diagnosed?
    • Family Grants
    • Family and Caregiver Support
      • Parenting and Finding Emotional Support
      • Parents and Family Members as Caregivers
      • Bereaved Parents and Caregivers
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    • Support for Batten Siblings
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    • Advocacy Toolkit
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  • What Is Batten Disease?
    • What Is Batten Disease
    • Types of Batten Disease
    • Symptoms and Diagnosis
  • Ways to Give
    • How to Give
    • Fam Funds
      • Interest Form
    • Donor Advised Fund Giving Form
  • Support
    • Centers of Excellence
    • Annual Family Conference
      • 2025 BDSRA Annual Family Conference
    • Caregiver Resources
    • Newly Diagnosed?
    • Family Grants
    • Family and Caregiver Support
      • Parenting and Finding Emotional Support
      • Parents and Family Members as Caregivers
      • Bereaved Parents and Caregivers
      • Nuts and Bolts of Care
      • Educational Resources
    • Support for Batten Siblings
    • Join the BDSRA Community
    • Resource Corner
  • Research
    • Global Research Initiative
      • Researcher Email List
    • Current Funded Projects
    • Centers of Excellence
    • Clinical Trials & Natural History Studies Chart
    • Family Register
    • Research and Clinical News
  • Advocacy
    • 2025 International Batten Disease Awareness Day Toolkit
    • Advocacy Toolkit
    • Rare Disease Week
    • State and Local Initiatives
    • Hometown Efforts
  • News
    • Illuminator Newsletter
    • Press and Media
    • Social Media
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  • Memorials
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Events for June 18, 2024 - March 1, 2024

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10 events found.

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  • April 2022

  • Fri 22
    April 22, 2022 @ 8:00 am

    Facebook: Equipment Exchange Swap Day

      This is an opportunity for individuals and families to [...]

  • May 2022

  • Thu 5
    May 5, 2022 @ 5:00 pm - 6:00 pm

    International Ask-An-Expert | Biotechs and NCL clinical research: Exploring the current landscape

    Join us for a special edition of BDSRA's virtual Ask-An-Expert [...]

  • Tue 10
    May 10, 2022 @ 7:00 pm - 8:00 pm

    BDSRA Quarterly Grief Chat

    Zoom

    BDSRA understands that each stage of this journey is different, [...]

  • June 2022

  • Thu 9
    June 9, 2022 @ 8:00 am - 8:00 pm

    International Batten Awareness Day 2022

    Click Here to Register!   June 9th is International Batten [...]

  • Tue 21
    June 21, 2022 @ 6:00 pm - 7:00 pm

    BDSRA Virtual Summer Bash

    Registration is open for BDSRA’s Virtual Summer Bash that will [...]

  • August 2022

  • Wed 17
    August 17, 2022 @ 6:00 pm - 7:00 pm

    Ask-An-Expert: BDSRA Family Conference Research Presentations Debrief

    Join us for Ask-An-Expert: BDSRA Family Conference Research Presentations Debrief [...]

  • September 2022

  • Thu 8
    September 8, 2022 @ 7:00 pm - 8:00 pm

    BDSRA Quarterly Grief Chat

    The BDSRA Foundation will host its next Quarterly Grief Chat [...]

  • Sat 17
    September 17, 2022 @ 9:00 am - 12:00 pm

    Bike For Batten 2022 (Nampa, ID)

    Registration for the 2nd Annual Bike for Batten fundraiser is [...]

  • Sun 18
    September 18, 2022 @ 7:00 pm - 8:00 pm

    Advocacy Committee Meeting

    Our Advocacy Committee invites you to discuss local and federal [...]

  • Sat 24
    September 24, 2022 @ 9:00 am - 11:30 am

    Bike For Batten 2022 (Colville, WA)

    Registration for the 2nd Annual Bike for Batten fundraiser is [...]

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