Board of Directors Meeting
ZoomThe BDSRA Foundation Board of Directors will meet virtually on [...]
10 events found.
-
-
-
2023 Research in Review Webinar
ZoomMark your calendars for Wednesday, Dec. 13 at 6 p.m. [...]
-
Holiday Grief Chat
Join host and bereaved Batten mother Peggy DiCapua for BDSRA's [...]
-
-
-
CLN7 Batten Disease Research Update
ZoomElpida Therapeutics will host an open virtual meeting via Zoom [...]
-
SIBs Mid-Season Social
CALLING ALL BATTEN SIBS! The time has come to re-connect [...]
-
-
Valentine’s Day Party
LOVE IS IN THE AIR! It’s time to mark your [...]
-
Rare Disease Week on Capitol Hill
For complete information on this event, including registration, please visit [...]
-
Rare Disease Day at NIH
For complete information on this event, including registration, click here. [...]
-
-
Rare Disease Day at FDA
For complete information on this event, including registration, click here. "FDA [...]
