Newly Diagnosed Meet and Greet
A place for new families to meet one another, learn [...]
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Ask-An-Expert Rare & Ready: Clearing Hurdles to Access Rare Disease Therapies
Join us to learn more about the Rare & Ready [...]
Support Group Leader Training
ZoomBDSRA wants to take a moment to thank you [...]
Ask-An-Expert: Courageous Parents Network Edition
Join us for Ask-An-Expert: Courageous Parents Network Edition on April [...]
Facebook: Equipment Exchange Swap Day
This is an opportunity for individuals and families to [...]
International Ask-An-Expert | Biotechs and NCL clinical research: Exploring the current landscape
Join us for a special edition of BDSRA's virtual Ask-An-Expert [...]
BDSRA Quarterly Grief Chat
ZoomBDSRA understands that each stage of this journey is different, [...]
International Batten Awareness Day 2022
Click Here to Register! June 9th is International Batten [...]
BDSRA Virtual Summer Bash
Registration is open for BDSRA’s Virtual Summer Bash that will [...]
Ask-An-Expert: BDSRA Family Conference Research Presentations Debrief
Join us for Ask-An-Expert: BDSRA Family Conference Research Presentations Debrief [...]
