Ask-An-Expert Rare & Ready: Clearing Hurdles to Access Rare Disease Therapies
Join us to learn more about the Rare & Ready [...]
Join us to learn more about the Rare & Ready [...]
BDSRA wants to take a moment to thank you [...]
Join us for Ask-An-Expert: Courageous Parents Network Edition on April [...]
This is an opportunity for individuals and families to [...]
Join us for a special edition of BDSRA's virtual Ask-An-Expert [...]
BDSRA understands that each stage of this journey is different, [...]
Click Here to Register! June 9th is International Batten [...]
Registration is open for BDSRA’s Virtual Summer Bash that will [...]
Join us for Ask-An-Expert: BDSRA Family Conference Research Presentations Debrief [...]
The BDSRA Foundation will host its next Quarterly Grief Chat [...]