International Ask-An-Expert | Biotechs and NCL clinical research: Exploring the current landscape
Join us for a special edition of BDSRA's virtual Ask-An-Expert [...]
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BDSRA Quarterly Grief Chat
ZoomBDSRA understands that each stage of this journey is different, [...]
International Batten Awareness Day 2022
Click Here to Register! June 9th is International Batten [...]
BDSRA Virtual Summer Bash
Registration is open for BDSRA’s Virtual Summer Bash that will [...]
Ask-An-Expert: BDSRA Family Conference Research Presentations Debrief
Join us for Ask-An-Expert: BDSRA Family Conference Research Presentations Debrief [...]
BDSRA Quarterly Grief Chat
The BDSRA Foundation will host its next Quarterly Grief Chat [...]
Bike For Batten 2022 (Nampa, ID)
Registration for the 2nd Annual Bike for Batten fundraiser is [...]
Advocacy Committee Meeting
Our Advocacy Committee invites you to discuss local and federal [...]
Bike For Batten 2022 (Colville, WA)
Registration for the 2nd Annual Bike for Batten fundraiser is [...]
Peer Support Group Leader Training
Join us for BDSRA Peer Support Group Leader Training on [...]
