Rare Disease Week on Capitol Hill
Rare Disease Week on Capitol Hill brings together rare disease [...]
Rare Disease Week on Capitol Hill brings together rare disease [...]
BDSRA understands that each stage of this journey is different, [...]
After a week of advocating for our Batten Community, join [...]
Registration is now open for BDSRA's Stay Golden Saint Patrick's [...]
A place for new families to meet one another, learn [...]
Join us to learn more about the Rare & Ready [...]
BDSRA wants to take a moment to thank you [...]
Join us for Ask-An-Expert: Courageous Parents Network Edition on April [...]
This is an opportunity for individuals and families to [...]
Join us for a special edition of BDSRA's virtual Ask-An-Expert [...]