2025-02-24 Rare Disease Week on Capitol Hill Rare Disease Week on Capitol Hill February 24 - February 26 Rare Disease Week on Capitol Hill UPDATE: FDA-NIH Rare Disease Day has been postponed. Click here […]
1:00 pm - 2:00 pm SIBs Mid-Season Social March 1 @ 1:00 pm - 2:00 pm SIBs Mid-Season Social The SIBs Mid-Season Social on Saturday, March 1, 2025, is open [...]
2025-03-30 DEADLINE: International Batten Disease Awareness Day T-Shirt Design Contest DEADLINE: International Batten Disease Awareness Day T-Shirt Design Contest March 30 DEADLINE: International Batten Disease Awareness Day T-Shirt Design Contest T-Shirt Contest: IT'S BACK AGAIN! For the third straight year, we […]