2025 ANNUAL FAMILY CONFERENCE MEMORIAL

CLICK HERE TO VISIT THE MAIN MEMORIAL PAGE.

Each year, our physical Memorial commemorating those we’ve lost to Batten disease is shipped and constructed for display and interaction at the Annual Family Conference, as shown on the right. 

If you want to update your loved one’s Memorial or create a new one to be displayed at this year’s Conference on the physical Memorial (and on the website), here’s what you need to do:

FOR THOSE WHO WANT TO CREATE A NEW MEMORIAL

  • New accounts can be made to create a Memorial. Please click here to get started.

FOR THOSE WITH EXISTING MEMORIALS

  • If you know both your email/username and password, you can access your loved one’s Memorial and make updates. If you need assistance, please contact noah@bdsrafoundation.org.
  • If you do not recall your email/username but believe you know your password, please contact noah@bdsrafoundation.org.
  • If you do not recall your username and password, please contact noah@bdsrafoundation.org.

FUTURE

After this year’s Conference, the Memorial will undergo some upgrades. We will update you via email and our social media channels to keep you informed about these changes. Thank you for your patience.