Program to Develop New Therapies for Batten disease
Sparks Children's Medical Research Dr Sara Mole, who has a [...]
Moving towards effective therapeutic strategies for Neuronal Ceroid Lipofuscinosis
Ryan D. Geraets, Seung yon Koh, Michelle L. Hastings, Tammy [...]
BioMarin CLN2 Results
“Intracerebroventricular cerliponase alpha (BMN 190) in children with CLN2 disease: [...]
2016 BDSRA Annual Family Conference
The hotel reservation link is now closed. If you have [...]
March Issue of the Illuminator
The March issue of the BDSRA newsletter The Illuminator is [...]
Call on Congress to Pass the OPEN ACT
Last year, the OPEN ACT, legislation that could double the [...]
BioMarin Announces Positive Data for Treatment of CLN2
SAN RAFAEL, Calif., March 02, 2016 (GLOBE NEWSWIRE) -- BioMarin [...]
February Issue of the Illuminator
The February issue of the BDSRA newsletter The Illuminator is [...]
2016 Annual Membership
Show Your Strength: February is membership month for BDSRA. To [...]
Batten Researchers Lobel and Sleat Receive the Edison Patent Award for Their Work in CLN2
Rutgers Scientists Develop Therapy for Fatal Childhood Disease The R&D [...]
