2016 BDSRA Annual Fund
Because of you. Because of families, volunteers, siblings and many [...]
November Issue of the Illuminator
The November issue of the BDSRA newsletter The Illuminator is [...]
Abeona Therapeutics Moves Forward with CLN 1 and CLN3 Gene Therapy
Abeona is eager to continue its commitment to the Batten [...]
2017 BDSRA Board Elections
There were four available seats on the BDSRA Board of [...]
Meet Dr. Jon Cooper
This summer Jon Cooper and his family moved from England [...]
Tammy Kielian, Ph.D., professor in the UNMC Department of Pathology and Microbiology, has been named the 11th UNMC Scientist Laureate.
The award is the highest honor UNMC bestows to researchers. [...]
October Issue of the Illuminator
The October issue of the BDSRA newsletter The Illuminator is [...]
15th International Conference on NCL
The 15th International Conference on NCL took place in Boston [...]
Battling Batten 5K Run and Family Walk
We are very excited to announce the Battling Batten Disease [...]
2015 BDSRA Annual Report
The 2015 BDSRA Annual Report is here and what a [...]
