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Social MediaTom Evans2025-01-09T17:31:41-05:00

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SUPPORT + RESEARCH + ADVOCACY. We are #BattenAdvocatesForACure. Click the link below for news, events, and how to donate.

TWO WEEKS FROM TODAY: Join the next BDSRA Grief Ch

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🚨 CONFERENCE RECORDINGS ARE HERE 🚨 View ses

In recent years, considerable progress has been ma

ASK-AN EXPERT IS BACK! Mark your calendars for We

🚨 FINAL CALL FOR EOIs 🚨 Expressions of Inte

In 2024, recognizing the urgent need to establish

☕ TODAY AT 12 PM EDT ☕ It’s not too late to

THIS WEEK’S EVENT: Join BDSRA Director of Family

If you’re a researcher who wants to submit an Ex

BREAKING: The BDSRA Foundation Announces @mountsin

Meet Heather Dainiak! Heather is BDSRA’s Directo

This week, lawmakers introduced H.Res.708, recogni

🗣️ September 17th is Childhood Dementia Day.

DEADLINE APPROACHING: The Batten Disease Global Re

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