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Social MediaTom Evans2025-01-09T17:31:41-05:00

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SUPPORT + RESEARCH + ADVOCACY. We are #BattenAdvocatesForACure. Click the link below for news, events, and how to donate.

There are LOTS of ways to give to the BDSRA Founda

Happy Holidays, Batten community! We’ll be closed

“If every single person on the planet knew about w

“I am forever grateful to BDSRA for the support, t

There are LOTS of ways to give to the BDSRA Founda

Batten disease is a devastating, rare disease prim

🧬 RESEARCH UPDATES 🧬 There’s LOTS to catch up on!

Wishing the Batten disease community a warm and jo

TONIGHT AT 7 PM EST! If you’re a bereaved Batten

Rise and shine! There’s a Coffee Chat TODAY! ☕ To

The holiday season can stir up so many emotions wh

REMINDER: Coffee Chat is THIS FRIDAY! ☕ If you’ve

Check your email! Our Holiday newsletter is hittin

JOIN US TONIGHT! Learn about research and clinica

The Holiday Grief Chat is ONE WEEK AWAY! If you’r

LOTS going on this week! Click the link in our bio

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