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Social MediaTom Evans2026-01-20T15:06:46-05:00

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SUPPORT + RESEARCH + ADVOCACY. We are #BattenAdvocatesForACure. Click the link below for news, events, and how to donate.

This year's conference is packed with programming

The 2026 BDSRA Annual Family Conference will be he

9 days to go, and we want YOU there. Registration

We are counting down to one of our most anticipate

LOTS to catch you up on ➡️ Read up on the latest B

🧬 Announcing the 2026 Batten Disease Research Awar

🚨 REGISTRATION IS OPEN (link in bio) 🚨 Join us in

UPCOMING DEADLINE ➡️ Need financial assistance to

International Batten Disease Awareness Day merch i

🚨🚨 FINAL CALL FOR MERCH 🚨🚨 If you want your “Love

Need financial assistance to attend July’s BDSRA A

BOOK YOUR HOTEL ROOM(S) ➡️ Link in bio! The hotel

🚨🚨 MERCH UPDATE 🚨🚨 You have ONE WEEK to order you

We’re looking ahead to some May flowers! Upcoming

🚨 APPLICATIONS REMAIN OPEN ➡️ Learn more and apply

If you’re attending the 2026 BDSRA Annual Family C

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