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Social MediaTom Evans2025-01-09T17:31:41-05:00

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SUPPORT + RESEARCH + ADVOCACY. We are #BattenAdvocatesForACure. Click the link below for news, events, and how to donate.

🚨🚨 UPCOMING EVENT 🚨🚨 Coffee Chats ret

September is Newborn Screening Awareness Month. Ne

Our office is CLOSED today in recognition of Labor

🚨🚨 FINAL CALL 🚨🚨 Sunday, August 31, i

Today is National Grief Awareness Day, a day to ra

🚨 CALLING ALL RESEARCHERS! 🚨 Applications a

🚨 DEADLINE THIS SUNDAY 🚨 You have until thi

ACTION ALERT: Tell your member of Congress to rene

Whether it’s bereaved Batten families, actively

🚨New Speakers announced for the 19th Internatio

APPLY TODAY: Are you ready to make an impact for t

🚨 RESEARCH GRANT NEWS 🚨 Expressions of Inte

Today is National Patient Advocacy Day, a day to s

RESEARCH UPDATES: The past three months have been

Today is National Nonprofit Day, which recognizes

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