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Social MediaTom Evans2025-01-09T17:31:41-05:00

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SUPPORT + RESEARCH + ADVOCACY. We are #BattenAdvocatesForACure. Click the link below for news, events, and how to donate.

🚨 TONIGHT AT 7 PM EST 🚨 The first of two Coffee C

To all our Annual Appeal donors, your support mean

Here’s a look back at some of the Annual Family Co

Need to talk? We’re here for you! ☕💛 TWO Coffee C

NEW JANUARY EVENT ⬇️ Join members of the BDSRA st

Elpida Therapeutics invites you to join a Zoom mee

☕ FIRST VIRTUAL EVENT OF THE NEW YEAR ☕ There wil

The BDSRA Foundation is proud to welcome four new

We need your ideas!! If you haven’t already, mark

Mark your calendars and kick off 2026 by learning

Happy New Year, Batten community! 🩵🎆 We hope 2026

As a bereaved Batten father, Chris Hawkins gives b

The BDSRA Foundation bids farewell to Darlene Roya

The BDSRA Annual Family Conference is a haven for

We wish a joyful Kwanzaa to our Batten disease com

Wishing our Batten disease community a Merry Chris

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