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Social MediaTom Evans2026-01-20T15:06:46-05:00

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SUPPORT + RESEARCH + ADVOCACY. We are #BattenAdvocatesForACure. Click the link below for news, events, and how to donate.

Mapping the Natural History of CLN3 Disease: A Glo

Join BDSRA’s Board of Directors for a Town Hall on

The first BDSRA newsletter of 2026 is waiting in y

Bereaved Batten father Chris Hawkins opens up on w

Friday the 13th will actually be your lucky day be

New month, new virtual events! 📆 If you’ve previou

🚨🚨 FINAL REMINDER 🚨🚨 You have until Sunday night

NEW: BDSRA Foundation announces @boystownhospital

📆 MARK YOUR CALENDARS! 📆 One month from today, on

Happy Birthday to our incredible colleague and fri

FINAL CALL FOR CONFERENCE THEME IDEAS! ⬇️⬇️⬇️ #Ba

We want to support you in any way we can. To do th

TONIGHT AT 6 PM EST ⬇️ Join BDSRA staff members f

There are TWO virtual events taking place TOMORROW

Good morning, Batten community! Let’s have some co

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