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Social MediaTom Evans2026-01-20T15:06:46-05:00

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SUPPORT + RESEARCH + ADVOCACY. We are #BattenAdvocatesForACure. Click the link below for news, events, and how to donate.

Unveiling the results of some of our recent fundra

The next BDSRA Virtual Grief Chat will focus on An

AVAILABLE NOW ➡️ The March edition of The Illumina

Another month means another Coffee Chat! ☕ This mo

This isn’t an April Fool’s joke; the Conference Gr

Mark your calendars! 🗓️ Here’s what to look out fo

We are still accepting volunteer help for this Jul

Can you believe this was almost 15 years ago?! 😲

Your help is needed for this July’s BDSRA Annual F

PRESS RELEASE: The BDSRA Foundation continues to e

By signing up for our email list, you’ll be kept u

GOOD MORNING, it’s Coffee Chat Day!!! ☕ See you at

🚨 FINAL CALL 🚨 Support the Batten disease communi

Thank you to our donors for delivering a pot of go

Our monthly Coffee Chats are open to parents and c

HAPPY ST. PATRICK’S DAY! 🌈🍀🌈🍀 TODAY’S THE DAY for

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