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Social MediaTom Evans2026-01-20T15:06:46-05:00

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SUPPORT + RESEARCH + ADVOCACY. We are #BattenAdvocatesForACure. Click the link below for news, events, and how to donate.

By signing up for our email list, you’ll be kept u

GOOD MORNING, it’s Coffee Chat Day!!! ☕ See you at

🚨 FINAL CALL 🚨 Support the Batten disease communi

Thank you to our donors for delivering a pot of go

Our monthly Coffee Chats are open to parents and c

HAPPY ST. PATRICK’S DAY! 🌈🍀🌈🍀 TODAY’S THE DAY for

The first meeting for Conference Volunteers is in

DON’T FORGET: Our No-Show St. Patrick’s Day Dinner

ONE WEEK TO GO! Support the Batten disease communi

As your local Coffee Shops hope you’ll order one o

It’s one of the simplest and most enjoyable fundra

🧬 RESEARCH UPDATES 🧬 Read the latest Batten disea

This St. Patrick’s Day, we invite you to participa

🚨 CALLING FOR VOLUNTEERS 🚨 Joining us in Chicago

Our own Dr. Ineka Whiteman will join fellow Batten

The March 21 deadline is nearly two weeks away!! R

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