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What Is Batten Disease?
What Is Batten Disease
Types of Batten Disease
Symptoms and Diagnosis
Ways to Give
Support
Annual Conference
2024 BDSRA Annual Conference
Watch Presentations
PHOTO GALLERY
2023 Conference Photo Gallery
2022 Conference Photo Gallery
Batten Disease Centers of Excellence
Newly Diagnosed?
Meet Batten Families | Fam Funds
Family Grants
Family and Caregiver Support
Parenting and Finding Emotional Support
Parents and Family Members as Caregivers
Bereaved Parents and Caregivers
Nuts and Bolts of Care
Educational Resources
Support for Batten Siblings
Join the BDSRA Community
Resource Corner
Research
Global Research Initiative
Batten Disease Centers of Excellence
Clinical Trials & Natural History Studies Chart
Family Register
Research and Clinical News
Research and Treatments
Current RFPs
Research Awards 2019
Advocacy
2024 International Batten Disease Awareness Day
Advocacy Toolkit
Rare Disease Week
State and Local Initiatives
Hometown Efforts
Memorials
About
History and Mission
Our Staff
Our Board of Directors
Investors
Financials and Reporting
International Partners
Contact
News
Illuminator Newsletter
Press and Media
Social Media
Events
What Is Batten Disease?
What Is Batten Disease
Types of Batten Disease
Symptoms and Diagnosis
Ways to Give
Support
Annual Conference
2024 BDSRA Annual Conference
Watch Presentations
PHOTO GALLERY
2023 Conference Photo Gallery
2022 Conference Photo Gallery
Batten Disease Centers of Excellence
Newly Diagnosed?
Meet Batten Families | Fam Funds
Family Grants
Family and Caregiver Support
Parenting and Finding Emotional Support
Parents and Family Members as Caregivers
Bereaved Parents and Caregivers
Nuts and Bolts of Care
Educational Resources
Support for Batten Siblings
Join the BDSRA Community
Resource Corner
Research
Global Research Initiative
Batten Disease Centers of Excellence
Clinical Trials & Natural History Studies Chart
Family Register
Research and Clinical News
Research and Treatments
Current RFPs
Research Awards 2019
Advocacy
2024 International Batten Disease Awareness Day
Advocacy Toolkit
Rare Disease Week
State and Local Initiatives
Hometown Efforts
Memorials
About
History and Mission
Our Staff
Our Board of Directors
Investors
Financials and Reporting
International Partners
Contact
News
Illuminator Newsletter
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Tom Evans
2024-03-19T15:23:53-04:00
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By donating $5 on Fridays, you help ensure that BD
🚨🚨 BATTEN RESEARCH UPDATE 🚨🚨 The Bat
Election Day is two weeks away! We encourage you t
This past weekend, our Head of Research & Medical
HAPPENING TONIGHT: If you’re a bereaved Batten p
Batten disease impacts families all over the world
REMINDER: The next BDSRA Grief Chat is THIS SUNDAY
MEMORIAL UPDATE: Our Database Manager Noah Siedman
A frightening fun time! 🎃 Thank you to everyone
TODAY’S THE DAY – 4 PM EDT via Zoom We can’
ONE WEEK FROM SUNDAY: If you’re a bereaved Batte
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