FDA Approves First Treatment for a Form of Batten Disease
The U.S. Food and Drug Administration today approved Brineura (cerliponase [...]
Become a BDSRA Conference Sponsor
Thank you to our early 2017 BDSRA Family Conference sponsors [...]
The April Issue of the Illuminator
The April issue of the Illuminator newsletter is here. To [...]
Your Membership Matters
Loyal members have been BDSRA's foundation and an inspiration [...]
January Issue of the Illimunator
The January issue of the BDSRA newsletter The Illuminator is [...]
Batten siblings run for a cure
Six amazing Batten siblings have registered to run the Disney [...]
2016 BDSRA Annual Fund
Because of you. Because of families, volunteers, siblings and many [...]
November Issue of the Illuminator
The November issue of the BDSRA newsletter The Illuminator is [...]
2017 BDSRA Board Elections
There were four available seats on the BDSRA Board of [...]
October Issue of the Illuminator
The October issue of the BDSRA newsletter The Illuminator is [...]
