IT’S RARE DISEASE DAY! 🦓 Here’s what we got going on
 THERE'S LOTS GOING ON! TODAY'S Nationwide Panda Express Fundraiser [...]
CLINICAL UPDATE: Tern Therapeutics Gives CLN2 Batten Disease Update
The following letter from Tern Therapeutics shares the latest on [...]
TAKE ACTION for the Batten Disease Community
 While Rare Disease Week on Capitol Hill attendees meet [...]
BIG BATTEN DISEASE FUNDRAISING NEWS…and a new event!
 28% of Panda Express Online Sales go to BDSRA [...]
Gretchen Fieschko Joins BDSRA Foundation Board of Directors
The BDSRA Foundation is thrilled to welcome Gretchen Fieschko to [...]
JANUARY 2025 NEWSLETTER | The Illuminator From BDSRA
 January 2025        [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | January 2025
It's time for the first Batten disease research updates [...]
BDSRA Fam Funds & Feedback
 *First 50 Responses will be mailed a $10 Dunkin' [...]
Beth Fries to Lead Development Projects for the BDSRA Foundation
Beth Fries We have contracted Beth Fries, a [...]
2024 Year-In-Review
 CLICK HERE TO DONATE TO BDSRA We’re just getting [...]
