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        • 2026 Conference Volunteers Needed
    • Caregiver Resources
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    • Advocacy Toolkit
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    • Symptoms and Diagnosis
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    • How to Give
    • Fam Funds
      • Interest Form
    • Donor Advised Fund Giving Form
  • Support
    • Centers of Excellence
    • Annual Family Conference
      • 2026 BDSRA Annual Family Conference
        • 2026 Conference Volunteers Needed
    • Caregiver Resources
    • Newly Diagnosed?
    • Family Grants
    • Family and Caregiver Support
      • Parenting and Finding Emotional Support
      • Parents and Family Members as Caregivers
      • Bereaved Parents and Caregivers
      • Nuts and Bolts of Care
      • Educational Resources
    • Support for Batten Siblings
    • Join the BDSRA Community
    • Resource Corner
  • Research
    • Global Research Initiative
      • Researcher Email List
    • Current Funded Projects
    • Centers of Excellence
    • Clinical Trials & Natural History Studies Chart
    • Family Register
    • Research and Clinical News
  • Advocacy
    • 2025 International Batten Disease Awareness Day Toolkit
    • Advocacy Toolkit
    • Rare Disease Week
    • State and Local Initiatives
    • Hometown Efforts
  • News
    • Illuminator Newsletter
    • Press and Media
    • Social Media
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  • About
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GET INVOLVED: Rare Disease Week 2026

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GET INVOLVED: Rare Disease Week 2026

 

Want to get involved? Visit our website to see all the different ways you can help the Batten disease community and BDSRA, whether it’s fundraising, raising awareness, advocating, or more.

Learn More
 

DON’T FORGET!

You can order Panda Express online THIS FRIDAY, FEBRUARY 27, to support the BDSRA Foundation and families affected by Batten disease before Rare Disease Day. PLEASE SHARE to spread the word! 

Details
 
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By Patrick Kotnik|2026-02-23T10:36:28-05:00February 23rd, 2026|Advocacy, Latest News|Comments Off on GET INVOLVED: Rare Disease Week 2026

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