Why NOW is the time to give to BDSRA

Thanks to YOUR generosity, major initiatives like the revitalization of the Centers of Excellence program, the establishment of the Batten Disease Global Research Initiative (BDGRI), and the Batten Disease Clinical Research Consortium (BDCRC) have become a reality. We can’t stop now. Help us take steps forward in Batten disease research by donating to the BDSRA Foundation. 

“I am forever grateful to BDSRA for the support, the connection, and the guidance that’s given to families like mine in the hardest time of our lives.”

Life came to a screeching halt for Kristin Robar and her family after her son’s Batten disease diagnosis. Since then, she’s created two businesses to raise awareness, education, and funds for the BDSRA Foundation for Batten disease research. Listen to Kristin’s story and join her in this fight for treatments and a cure for Batten disease.