BDSRA 2026 Annual Family Conference | Ideas from Batten Disease Community

Here’s a look back at some of the Annual Family Conference themes over the past four years!

We need your ideas!! If you haven’t already, mark your calendars for the 2026 Annual Family Conference for July 10-12 at the Westin Chicago Lombard! As you await further info, what do YOU think this year’s Conference theme should be? 

Email your idea(s) to patrick@bdsrafoundation.org!