The Batten Disease Support, Research, and Advocacy (BDSRA) Foundation joins fellow non-profit advocacy and association partners in urging the Senate HELP Committee to take action on S. 350, the “Newborn Screening Saves Lives Reauthorization Act of 2021”.

This bill, sponsored by Senators Maggie Hassan (D-NH) and Roger Wicker (R-MS), would address the disparities and challenges associated with Newborn Screening and help pave the way forward for improved, life-saving screening practices. The legislation passed the House in June 2021.

Read the detailed letter sent to the Senate HELP Committee signed by Non-Profit Advocacy and Association Partners here.

Advancing this legislation to the senate floor would bring this bill one step closer to innovating newborn screening programs and an end to the senate’s delay, jeopardizing the health and well-being of thousands of newborns across the country born with serious and life-threatening conditions.

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