Beth Fries
We have contracted Beth Fries, a Batten mother to her two CLN3-affected daughters, to lead development projects for BDSRA, including the re-launch of our Fam Funds initiative! Beth will be the main contact for Fam Funds, helping families launch their own fundraisers to help raise funds for BDSRA.
Stay tuned for more information on this exciting initiative and how to sign up!
