BDSRA Executive Director
BDSRA is currently accepting applications for the position of Executive [...]
Emerging Research Conference Travel Award Winners
From left to right: Dr. Dearborn, Dr. Dang Do, [...]
Collaborations Pharmaceuticals, Inc. to partner with Washington University in St. Louis on Batten Disease
We are excited to share this research update from Collaborations [...]
BDSRA 2019 Board Nominations
The BDSRA Board of Directors has several open seats for [...]
REGENXBIO Announces Pipeline Expansion with RGX-181 Gene Therapy for CLN2 Form of Batten Disease
The expansion of Batten Disease treatment options is crucial to [...]
Sibling Highlight: Award Winning Poet Shalini Rana
In April, Shalini Rana, sibling of Shiv Rana CLN6, won third [...]
From Bench to Bedside, Getting to an FDA Approval
It is an exciting time for Batten research! As new [...]
Batten Connect and Laps 4 Life
Margie’s trip to Manitoba started with the Batten Connect Information [...]
Family Conference Agenda
We are excited to share the tentative agenda for the [...]
February Funding Partners!
The often grey and cold winter month of February brings [...]
