Latest News

Johnston Memorial Fund & Staff Changes

To whom it may concern, We, the board of [...]

By Tom Evans|2020-09-24T07:23:21-04:00September 23rd, 2020|Latest News|Comments Off

We live in an exciting and sometimes unpredictable world, but [...]

By Noreen Murphy|2020-04-30T15:14:07-04:00April 30th, 2020|Latest News|Comments Off

BDSRA will continue accepting BDSRA Store orders but due to [...]

By Noreen Murphy|2020-03-27T10:25:11-04:00March 27th, 2020|Latest News|Comments Off

The latest issue of the Illuminator is here. Click here [...]

By Noreen Murphy|2019-10-29T15:20:36-04:00October 29th, 2019|Latest News|Comments Off

Click here to read the latest issue of the newsletter, [...]

By Noreen Murphy|2019-09-04T14:59:49-04:00September 4th, 2019|Latest News|Comments Off

Click here to read the latest issue of the newsletter

By Noreen Murphy|2019-08-09T13:40:00-04:00August 9th, 2019|Latest News|Comments Off

The Batten disease community is one of support and strength, [...]

By Noreen Murphy|2019-07-02T12:56:13-04:00July 2nd, 2019|Latest News|Comments Off

The newsletter is here! Click here to read the latest issue.

By Noreen Murphy|2019-06-21T19:32:17-04:00June 21st, 2019|Latest News|Comments Off

June 9th is International Batten Disease Awareness [...]

By Noreen Murphy|2019-05-17T09:11:08-04:00May 17th, 2019|Latest News|Comments Off

Dear BDSRA Community, As you may know, BDSRA is creating [...]

By Noreen Murphy|2019-05-09T09:32:58-04:00May 9th, 2019|Latest News|Comments Off