BDSRA Announces Board Nominations for November Elections
October 5, 2017 Dear BDSRA Friends, The Batten community [...]
The newest issue of the Illuminator
The latest issue of the Illuminator is here! This edition [...]
The August issue of the Illuminator
Chick here to read the newest issue of the BDSRA newsletter
The June Issue of the Illuminator
The June issue of the Illuminator newsletter is here. To [...]
2017 Batten Awareness Weekend
Join us June 3rd and 4th as we raise awareness [...]
Batten Awareness Weekend Virtual 5K
We are happy to announce that registration for the 2017 [...]
FDA Approves First Treatment for a Form of Batten Disease
The U.S. Food and Drug Administration today approved Brineura (cerliponase [...]
Become a BDSRA Conference Sponsor
Thank you to our early 2017 BDSRA Family Conference sponsors [...]
The April Issue of the Illuminator
The April issue of the Illuminator newsletter is here. To [...]
Your Membership Matters
Loyal members have been BDSRA's foundation and an inspiration [...]
