St. Louis is the next stop on our path to a cure. 🛣️

Read below for more information on the hotel room block and conference grants for the 2024 BDSRA Annual Family Conference.

Make your reservation to join us in St. Louis! Rooms in our group block are priced at $119 plus taxes and fees.

Room cancellation is 48 hours before arrival. Complimentary parking and guest room internet are included. Incidentals are $50 per night per room, credit/debit card must be authorized for room tax and incidentals.

The Hotel does NOT accept cash. Upon checkout, any unused funds are returned to the Credit/debit account. The amount of time it takes to receive the returned funds is up to your banking institution, but it is typically within 7 working days after check-out. Click the button below for more information and to reserve your room(s) today.

Thanks to forward-thinking, generous donors who lost their children to Batten disease, each year there is a limited amount of funding available for families based in the U.S. or Canada who need assistance to attend the BDSRA Annual Family Conference.

Priority is given to families who have not received funding in the past for the conference, new families, and those who have been unable to attend for several years due to financial stress. Click the button below to learn more and to apply.