Advocacy Committee Meeting
Our Advocacy Committee invites you to discuss local and federal [...]
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Advocacy Event
International Batten Disease Awareness Day/Virtual 5K
Our goal is to honor and support those affected by [...]
Rare Disease Week on Capitol Hill
For complete information on this event, including registration, please visit [...]
Rare Disease Day at NIH
For complete information on this event, including registration, click here. [...]
Rare Disease Day at FDA
For complete information on this event, including registration, click here. "FDA [...]
International Batten Disease Awareness Day
About this event: Join us as we celebrate Batten families [...]
Rare Disease Week on Capitol Hill
UPDATE: FDA-NIH Rare Disease Day has been postponed. Click here [...]
DEADLINE: International Batten Disease Awareness Day T-Shirt Design Contest
T-Shirt Contest: IT'S BACK AGAIN! For the third straight year, we [...]
