International Batten Disease Awareness Day
About this event: Join us as we celebrate Batten families [...]
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Advocacy Event
Rare Disease Week on Capitol Hill
UPDATE: FDA-NIH Rare Disease Day has been postponed. Click here [...]
DEADLINE: International Batten Disease Awareness Day T-Shirt Design Contest
T-Shirt Contest: IT'S BACK AGAIN! For the third straight year, we [...]
