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    • What Is Batten Disease
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    • Symptoms and Diagnosis
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    • Fam Funds
      • Interest Form
    • Donor Advised Fund Giving Form
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      • 2025 BDSRA Annual Family Conference
    • Caregiver Resources
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  • What Is Batten Disease?
    • What Is Batten Disease
    • Types of Batten Disease
    • Symptoms and Diagnosis
  • Ways to Give
    • How to Give
    • Fam Funds
      • Interest Form
    • Donor Advised Fund Giving Form
  • Support
    • Centers of Excellence
    • Annual Family Conference
      • 2025 BDSRA Annual Family Conference
    • Caregiver Resources
    • Newly Diagnosed?
    • Family Grants
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      • Researcher Email List
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    • Family Register
    • Research and Clinical News
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    • Advocacy Toolkit
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    • State and Local Initiatives
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    • Illuminator Newsletter
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Events for December 1 - November 1

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10 events found.

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  • April 2024

  • Tue 9
    April 9, 2024 @ 5:00 pm - 6:00 pm

    Ask-An-Expert Webinar: Research in Review

    Ask-An-Expert returns on Tuesday, April 9 from 5:00-6:00 p.m. EDT for a [...]

  • June 2024

  • Wed 5
    June 5, 2024 @ 8:00 pm - 9:00 pm

    Moderator Support Training

    Zoom

    On Wednesday, June 5 at 8 p.m. EDT, Dr. Joseph Vigil [...]

  • Sun 9
    June 9, 2024

    International Batten Disease Awareness Day

      About this event: Join us as we celebrate Batten families [...]

  • Tue 18
    June 18, 2024 @ 6:30 pm - 7:30 pm

    First-Time Conference Attendee Orientation

    Zoom

    BDSRA will hold a First-Time Conference Attendee Orientation on Tuesday, June [...]

  • Wed 19
    June 19, 2024 @ 6:30 pm - 7:30 pm

    SIBs Warm-Up

    Zoom

    Before you reunite with your fellow SIBs in person at [...]

  • July 2024

  • Fri 12
    July 12, 2024 - July 14, 2024

    Annual Family Conference in St. Louis

    Click here to visit the main conference page on our [...]

  • August 2024

  • Sun 11
    August 11, 2024 @ 4:00 pm - 5:00 pm

    2nd Annual Dog Days of Summer Virtual Party

    Zoom

    The summer days are hot, but hanging out with your [...]

  • October 2024

  • Sun 13
    October 13, 2024 @ 4:00 pm - 5:00 pm

    Boo Bash 2024

    Zoom

    CLICK HERE TO REGISTER Who's ready for a scary good [...]

  • November 2024

  • Mon 4
    November 4, 2024 - January 1, 2025

    2024 Annual Appeal

    Beginning on November 4, the BDSRA Foundation will open its [...]

  • January 2025

  • Tue 28
    January 28 @ 12:30 pm - 1:30 pm

    Fam Funds Informational Zoom Meeting

    Zoom

    FAM FUNDS IS BACK! Batten families now have the opportunity [...]

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