BDSRA Board of Directors Quarterly Meeting
ZoomBDSRA’s Board of Directors will have its quarterly meeting virtually on [...]
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Moderator Support Training
ZoomOn Wednesday, June 5 at 8 p.m. EDT, Dr. Joseph Vigil [...]
International Batten Disease Awareness Day
About this event: Join us as we celebrate Batten families [...]
First-Time Conference Attendee Orientation
ZoomBDSRA will hold a First-Time Conference Attendee Orientation on Tuesday, June [...]
SIBs Warm-Up
ZoomBefore you reunite with your fellow SIBs in person at [...]
Annual Family Conference in St. Louis
Click here to visit the main conference page on our [...]
2nd Annual Dog Days of Summer Virtual Party
ZoomThe summer days are hot, but hanging out with your [...]
Boo Bash 2024
ZoomCLICK HERE TO REGISTER Who's ready for a scary good [...]
2024 Annual Appeal
Beginning on November 4, the BDSRA Foundation will open its [...]
Holiday Grief Chat
ZoomBDSRA, as part of its Life Goes On program for [...]
