2025 International Batten Disease Awareness Day & Virtual 5K
CLICK BELOW FOR ALL INFORMATION ON INTERNATIONAL BATTEN DISEASE AWARENESS [...]
10 events found.
Newly Diagnosed & First-Time Conference Attendee Orientation
ZoomBDSRA will hold a Newly Diagnosed & First-Time Conference Attendee [...]
Coffee Chat
ZoomHosted by Batten parent Heather Dainiak, these chats are a [...]
2025 BDSRA Annual Family Conference
CLICK BELOW FOR ALL INFORMATION ON THE 2025 BDSRA ANNUAL [...]
Board of Directors Application Deadline
Our Board of Directors makes a difference for the Batten [...]
Ask-An-Expert: Understanding ABLE Saving Plans
ZoomASK-AN-EXPERT RETURNS! Mark your calendars for Wednesday, October 15, at 6 [...]
Grief Chat
ZoomBDSRA, as part of its Life Goes On program for [...]
NCL 2025 in Australia
On behalf of the NCL2025 Organizing Committee, BDSRA [...]
Board of Directors Town Hall (Eastern Time Slot)
ZoomVirtual Town Halls with the BDSRA Foundation Board of Directors [...]
Board of Directors Town Hall (Pacific Time Slot)
ZoomVirtual Town Halls with the BDSRA Foundation Board of Directors [...]
