Valentine’s Day Party
ZoomLove is in the air, and so is fun! The [...]
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Rare Disease Week on Capitol Hill
UPDATE: FDA-NIH Rare Disease Day has been postponed. Click here [...]
SIBs Mid-Season Social
ZoomThe SIBs Mid-Season Social on Saturday, March 1, 2025, is open [...]
DEADLINE: International Batten Disease Awareness Day T-Shirt Design Contest
T-Shirt Contest: IT'S BACK AGAIN! For the third straight year, we [...]
2025 International Batten Disease Awareness Day & Virtual 5K
CLICK BELOW FOR ALL INFORMATION ON INTERNATIONAL BATTEN DISEASE AWARENESS [...]
Newly Diagnosed & First-Time Conference Attendee Orientation
ZoomBDSRA will hold a Newly Diagnosed & First-Time Conference Attendee [...]
Coffee Chat
ZoomHosted by Batten parent Heather Dainiak, these chats are a [...]
2025 BDSRA Annual Family Conference
CLICK BELOW FOR ALL INFORMATION ON THE 2025 BDSRA ANNUAL [...]
Board of Directors Application Deadline
Our Board of Directors makes a difference for the Batten [...]
Ask-An-Expert: Understanding ABLE Saving Plans
ZoomASK-AN-EXPERT RETURNS! Mark your calendars for Wednesday, October 15, at 6 [...]
