Coffee Chat
ZoomHosted by Batten parent Heather Dainiak, these chats are a [...]
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Grief Chat
ZoomBDSRA, as part of its Life Goes On program for [...]
2025 International Batten Disease Awareness Day & Virtual 5K
CLICK BELOW FOR ALL INFORMATION ON INTERNATIONAL BATTEN DISEASE AWARENESS [...]
2025 BDSRA Annual Family Conference
CLICK BELOW FOR ALL INFORMATION ON THE 2025 BDSRA ANNUAL [...]
NCL 2025 in Australia
On behalf of the NCL2025 Organizing Committee, BDSRA [...]
