CLN7 Batten Disease Research Update
ZoomElpida Therapeutics will host an open virtual meeting via Zoom [...]
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SIBs Mid-Season Social
CALLING ALL BATTEN SIBS! The time has come to re-connect [...]
Valentine’s Day Party
LOVE IS IN THE AIR! It’s time to mark your [...]
Rare Disease Week on Capitol Hill
For complete information on this event, including registration, please visit [...]
Rare Disease Day at NIH
For complete information on this event, including registration, click here. [...]
Rare Disease Day at FDA
For complete information on this event, including registration, click here. "FDA [...]
Ask-An-Expert Webinar: Research in Review
Ask-An-Expert returns on Tuesday, April 9 from 5:00-6:00 p.m. EDT for a [...]
BDSRA Board of Directors Quarterly Meeting
ZoomBDSRA’s Board of Directors will have its quarterly meeting virtually on [...]
Moderator Support Training
ZoomOn Wednesday, June 5 at 8 p.m. EDT, Dr. Joseph Vigil [...]
International Batten Disease Awareness Day
About this event: Join us as we celebrate Batten families [...]
