Rare Disease Week on Capitol Hill
For complete information on this event, including registration, please visit [...]
Loading view.
Rare Disease Day at NIH
For complete information on this event, including registration, click here. [...]
Rare Disease Day at FDA
For complete information on this event, including registration, click here. "FDA [...]
Ask-An-Expert Webinar: Research in Review
Ask-An-Expert returns on Tuesday, April 9 from 5:00-6:00 p.m. EDT for a [...]
BDSRA Board of Directors Quarterly Meeting
ZoomBDSRA’s Board of Directors will have its quarterly meeting virtually on [...]
Moderator Support Training
ZoomOn Wednesday, June 5 at 8 p.m. EDT, Dr. Joseph Vigil [...]
International Batten Disease Awareness Day
About this event: Join us as we celebrate Batten families [...]
First-Time Conference Attendee Orientation
ZoomBDSRA will hold a First-Time Conference Attendee Orientation on Tuesday, June [...]
SIBs Warm-Up
ZoomBefore you reunite with your fellow SIBs in person at [...]
Annual Family Conference in St. Louis
Click here to visit the main conference page on our [...]
