Skip to content
<
Batten Disease Support & Research Association Logo Batten Disease Support & Research Association Logo
$5 Fridays
DONATE
SIGN UP FOR OUR EMAIL LIST
  • What Is Batten Disease?
    • What Is Batten Disease
    • Types of Batten Disease
    • Symptoms and Diagnosis
  • Ways to Give
    • How to Give
    • Fam Funds
      • Interest Form
    • Donor Advised Fund Giving Form
  • Support
    • Centers of Excellence
    • Annual Family Conference
      • 2025 BDSRA Annual Family Conference
    • Caregiver Resources
    • Newly Diagnosed?
    • Family Grants
    • Family and Caregiver Support
      • Parenting and Finding Emotional Support
      • Parents and Family Members as Caregivers
      • Bereaved Parents and Caregivers
      • Nuts and Bolts of Care
      • Educational Resources
    • Support for Batten Siblings
    • Join the BDSRA Community
    • Resource Corner
  • Research
    • Global Research Initiative
      • Researcher Email List
    • Current Funded Projects
    • Centers of Excellence
    • Clinical Trials & Natural History Studies Chart
    • Family Register
    • Research and Clinical News
  • Advocacy
    • 2025 International Batten Disease Awareness Day Toolkit
    • Advocacy Toolkit
    • Rare Disease Week
    • State and Local Initiatives
    • Hometown Efforts
  • News
    • Illuminator Newsletter
    • Press and Media
    • Social Media
    • Events
  • Memorials
  • About
    • History and Mission
    • Our Staff
    • Our Board of Directors
    • Investors
    • Financials and Reporting
    • International Partners
  • Contact
  • What Is Batten Disease?
    • What Is Batten Disease
    • Types of Batten Disease
    • Symptoms and Diagnosis
  • Ways to Give
    • How to Give
    • Fam Funds
      • Interest Form
    • Donor Advised Fund Giving Form
  • Support
    • Centers of Excellence
    • Annual Family Conference
      • 2025 BDSRA Annual Family Conference
    • Caregiver Resources
    • Newly Diagnosed?
    • Family Grants
    • Family and Caregiver Support
      • Parenting and Finding Emotional Support
      • Parents and Family Members as Caregivers
      • Bereaved Parents and Caregivers
      • Nuts and Bolts of Care
      • Educational Resources
    • Support for Batten Siblings
    • Join the BDSRA Community
    • Resource Corner
  • Research
    • Global Research Initiative
      • Researcher Email List
    • Current Funded Projects
    • Centers of Excellence
    • Clinical Trials & Natural History Studies Chart
    • Family Register
    • Research and Clinical News
  • Advocacy
    • 2025 International Batten Disease Awareness Day Toolkit
    • Advocacy Toolkit
    • Rare Disease Week
    • State and Local Initiatives
    • Hometown Efforts
  • News
    • Illuminator Newsletter
    • Press and Media
    • Social Media
    • Events
  • Memorials
  • About
    • History and Mission
    • Our Staff
    • Our Board of Directors
    • Investors
    • Financials and Reporting
    • International Partners
  • Contact
  • What Is Batten Disease?
    • What Is Batten Disease
    • Types of Batten Disease
    • Symptoms and Diagnosis
  • Ways to Give
    • How to Give
    • Fam Funds
      • Interest Form
    • Donor Advised Fund Giving Form
  • Support
    • Centers of Excellence
    • Annual Family Conference
      • 2025 BDSRA Annual Family Conference
    • Caregiver Resources
    • Newly Diagnosed?
    • Family Grants
    • Family and Caregiver Support
      • Parenting and Finding Emotional Support
      • Parents and Family Members as Caregivers
      • Bereaved Parents and Caregivers
      • Nuts and Bolts of Care
      • Educational Resources
    • Support for Batten Siblings
    • Join the BDSRA Community
    • Resource Corner
  • Research
    • Global Research Initiative
      • Researcher Email List
    • Current Funded Projects
    • Centers of Excellence
    • Clinical Trials & Natural History Studies Chart
    • Family Register
    • Research and Clinical News
  • Advocacy
    • 2025 International Batten Disease Awareness Day Toolkit
    • Advocacy Toolkit
    • Rare Disease Week
    • State and Local Initiatives
    • Hometown Efforts
  • News
    • Illuminator Newsletter
    • Press and Media
    • Social Media
    • Events
  • Memorials
  • About
    • History and Mission
    • Our Staff
    • Our Board of Directors
    • Investors
    • Financials and Reporting
    • International Partners
  • Contact

Events for June 18, 2024 - March 1, 2024

  1. Home
  2. Events
8 events found.

Events Search and Views Navigation

Event Views Navigation

  • List
  • Month
  • Day
Today
  • October 2025

  • Wed 15
    October 15 @ 6:00 pm - 7:00 pm

    Ask-An-Expert: Understanding ABLE Saving Plans

    Zoom

    ASK-AN-EXPERT RETURNS! Mark your calendars for Wednesday, October 15, at 6 [...]

  • Tue 28
    October 28 - November 1

    NCL 2025 in Australia

        On behalf of the NCL2025 Organizing Committee, BDSRA [...]

  • November 2025

  • Sun 9
    November 9 @ 7:00 pm - 8:00 pm

    Board of Directors Town Hall (Eastern Time Slot)

    Zoom

    Virtual Town Halls with the BDSRA Foundation Board of Directors [...]

  • Sun 9
    November 9 @ 7:00 pm - 8:00 pm

    Board of Directors Town Hall (Pacific Time Slot)

    Zoom

    Virtual Town Halls with the BDSRA Foundation Board of Directors [...]

  • December 2025

  • Mon 1
    December 1 @ 8:00 pm - 9:00 pm

    Ask-An-Expert: Navigating Joy and Sadness During the Holidays (TIME CHANGE)

    Zoom

    TIME CHANGE: This session will now begin at 8:00 PM [...]

  • Tue 9
    December 9 @ 7:00 pm - 8:00 pm

    Ask-An-Expert: NCL Congress and BDSRA Australia Conference Updates (RESCHEDULED)

    Zoom

    UPDATE (11/18/2025): This event has been rescheduled for Tuesday, December [...]

  • Fri 12
    December 12 @ 12:00 pm - 1:00 pm

    Coffee Chat

    Zoom

    Hosted by Batten parent Heather Dainiak, these chats are a [...]

  • Sun 14
    December 14 @ 7:00 pm - 8:00 pm

    Holiday Grief Chat

    Zoom

    BDSRA, as part of its Life Goes On program for [...]

  • Previous Events
  • Today
  • Google Calendar
  • iCalendar
  • Outlook 365
  • Outlook Live
  • Export .ics file
  • Export Outlook .ics file

PO Box 30049
Gahanna, OH 43230
(800) 448-4570

Copyright © 2025 Batten Disease Support, Research, and Advocacy Foundation. | All Rights Reserved | Privacy Policy | Sitemap | Terms & Conditions

Page load link
entT
Go to Top