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Newly Diagnosed & First-Time Conference Attendee Orientation
ZoomBDSRA will hold a Newly Diagnosed & First-Time Conference Attendee [...]
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2025 BDSRA Annual Family Conference
CLICK BELOW FOR ALL INFORMATION ON THE 2025 BDSRA ANNUAL [...]
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Board of Directors Application Deadline
Our Board of Directors makes a difference for the Batten [...]
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Ask-An-Expert: Understanding ABLE Saving Plans
ZoomASK-AN-EXPERT RETURNS! Mark your calendars for Wednesday, October 15, at 6 [...]
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NCL 2025 in Australia
On behalf of the NCL2025 Organizing Committee, BDSRA [...]
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Ask-An-Expert: Navigating Joy and Sadness During the Holidays (TIME CHANGE)
ZoomTIME CHANGE: This session will now begin at 8:00 PM [...]
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Ask-An-Expert: NCL Congress and BDSRA Australia Conference Updates (RESCHEDULED)
ZoomUPDATE (11/18/2025): This event has been rescheduled for Tuesday, December [...]
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Coffee Chat
ZoomHosted by Batten parent Heather Dainiak, these chats are a [...]
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CLN7 Community Update
ZoomElpida Therapeutics invites you to join a Zoom meeting on [...]
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