We’re in the final stretch of our countdown to International Batten Disease Awareness Day on June 9th!
Today, we began promoting a daily activity and Batten fact for those who wish to participate to help us raise awareness for International Batten Disease Awareness Day on June 9th. In addition, we would also like participants to advocate by printing out the International Batten Disease Awareness Day “racing bib” and sharing with us what motivates you to move this June 9th.
Click here to access the racing bib and directions
You can share your photos on your own social media using #BattenDay2022 or by tagging @BDSRA and we will include your advocacy efforts across our social media. You can also send photos via email (info@bdsra.org) to be shared with our Batten Community. For more ideas, check out some of our Batten Advocates above.
Thank you all again for joining BDSRA as we raise awareness for International Batten Disease Awareness Day and for all those in our Batten community.
Click here to register for the BDSRA Virtual 5K on June 9th!
See you June 9th!
