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  • What Is Batten Disease?
    • What Is Batten Disease
    • Types of Batten Disease
    • Symptoms and Diagnosis
  • Ways to Give
    • Fam Funds
      • Interest Form
    • Giving Guide
    • 2024 Annual Appeal
    • Donor Advised Fund Giving Form
  • Support
    • Centers of Excellence
    • Annual Family Conference
      • 2025 BDSRA Annual Family Conference
    • Caregiver Resources
    • Newly Diagnosed?
    • Family Grants
    • Family and Caregiver Support
      • Parenting and Finding Emotional Support
      • Parents and Family Members as Caregivers
      • Bereaved Parents and Caregivers
      • Nuts and Bolts of Care
      • Educational Resources
    • Support for Batten Siblings
    • Join the BDSRA Community
    • Resource Corner
  • Research
    • Global Research Initiative
      • Researcher Email List
    • Current Funded Projects
    • Centers of Excellence
    • Clinical Trials & Natural History Studies Chart
    • Family Register
    • Research and Clinical News
  • Advocacy
    • 2025 International Batten Disease Awareness Day Toolkit
      • Batten Disease Awareness Day Shop Fundraisers
    • Advocacy Toolkit
    • Rare Disease Week
    • State and Local Initiatives
    • Hometown Efforts
  • News
    • Illuminator Newsletter
    • Press and Media
    • Social Media
    • Events
  • Memorials
  • About
    • History and Mission
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    • Our Board of Directors
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    • International Partners
  • Contact
  • What Is Batten Disease?
    • What Is Batten Disease
    • Types of Batten Disease
    • Symptoms and Diagnosis
  • Ways to Give
    • Fam Funds
      • Interest Form
    • Giving Guide
    • 2024 Annual Appeal
    • Donor Advised Fund Giving Form
  • Support
    • Centers of Excellence
    • Annual Family Conference
      • 2025 BDSRA Annual Family Conference
    • Caregiver Resources
    • Newly Diagnosed?
    • Family Grants
    • Family and Caregiver Support
      • Parenting and Finding Emotional Support
      • Parents and Family Members as Caregivers
      • Bereaved Parents and Caregivers
      • Nuts and Bolts of Care
      • Educational Resources
    • Support for Batten Siblings
    • Join the BDSRA Community
    • Resource Corner
  • Research
    • Global Research Initiative
      • Researcher Email List
    • Current Funded Projects
    • Centers of Excellence
    • Clinical Trials & Natural History Studies Chart
    • Family Register
    • Research and Clinical News
  • Advocacy
    • 2025 International Batten Disease Awareness Day Toolkit
      • Batten Disease Awareness Day Shop Fundraisers
    • Advocacy Toolkit
    • Rare Disease Week
    • State and Local Initiatives
    • Hometown Efforts
  • News
    • Illuminator Newsletter
    • Press and Media
    • Social Media
    • Events
  • Memorials
  • About
    • History and Mission
    • Our Staff
    • Our Board of Directors
    • Investors
    • Financials and Reporting
    • International Partners
  • Contact

Reserve Your Hotel Room(s) for the 2025 Annual Family Conference!

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  3. Reserve Your Hotel Room(s) for the 2025 Annual Family Conference!

Reserve Your Hotel Room(s) for the 2025 Annual Family Conference!

 

RESERVE YOUR HOTEL ROOM IN LINCOLN, NEBRASKA!

The hotel room block for this year’s Annual Family Conference is open!

Reserve your room(s) today and join us in Lincoln, Nebraska in July. The conference will take place at the Lincoln Marriott Cornhusker Hotel from July 11-13. Pre-conference activities will be held on Thursday, July 10.

Click the button below to book your hotel room(s)!

Book now

 

Apply for a Conference Grant

U.S. and Canadian families may apply for a grant to attend the 2025 Annual Family Conference in Lincoln, Nebraska by the April 14 deadline. Priority will be given to families who haven’t received any funding in the past for the conference, are a first-time attendee, or have been unable to attend for several years due to financial stress.

Click the button below for more details!

Apply today

 
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By Patrick Kotnik|2025-03-21T16:47:14-04:00March 24th, 2025|Latest News|Comments Off on Reserve Your Hotel Room(s) for the 2025 Annual Family Conference!

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