How BDSRA Supports Bereaved and Actively Caring Batten Disease Families

The BDSRA Annual Family Conference is a haven for our Batten disease community. It’s where lifelong bonds and friendships are formed and where crucial information is learned. Your gifts to the BDSRA Foundation make the Annual Family Conference possible, so Batten families like Mitch’s won’t be alone on their Batten journey. Join our Batten families in the fight for treatments and a cure for Batten disease. 

As a bereaved Batten father, Chris Hawkins gives back to the Batten disease community by assisting with BDSRA’s virtual Grief Chats. Your donations to BDSRA make our virtual programming possible, providing much-needed support to both bereaved and actively caring families affected by Batten disease. Your support means families aren’t alone in battling this devastating disease. Join Chris in the fight for treatments and a cure for Batten disease