How Your Gifts Impact the BDSRA Annual Family Conference

The BDSRA Annual Family Conference is a staple with our Batten disease community made possible by our donors. By giving to BDSRA, you help ensure this yearly tradition and the positive impact it has on families, SIBs, bereaved parents, researchers, clinicians, and staff continues.

Invest in our Mission

Other Ways to Give

Did you know you can give to the BDSRA Foundation with a qualified charitable distribution (QCD)? Also known as an IRA distribution, a QCD allows you to give up to $100,000 per year to nonprofit organizations such as BDSRA. When you donate this way, the donation also can count toward your required minimum distribution. Please consult your tax advisor. To learn more, please contact BDSRA President & CEO Amy Fenton Parker at amy@bdsrafoundation.org.

There are three ways to give to the BDSRA Foundation using your Life Insurance policy: name the Foundation as a beneficiary when you buy the policy, edit an existing policy to include us as the beneficiary or transfer ownership of the policy to the Foundation. To learn more, please contact Amy at amy@bdsrafoundation.org.

BE ON THE LOOKOUT! 👀

Our Annual Appeal letter will be hitting your mailboxes soon. The letter highlights our recent milestones and the different ways you can support our mission.