Important Conference Deadline TODAY!

❗DEADLINE DAY❗

Today is the final day you can take advantage of our Early Bird Conference Registration special, purchase conference T-shirts, register for offsite events at the conference, and Celebration of Life submissions.

Click the button to register!

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UPCOMING EVENTS NEXT WEEK

First-Time Conference Attendee Orientation

Tuesday, June 18 | 6:30 PM EDT

If you’re attending the Annual Family Conference for the first time next month in St. Louis, be sure to register for and attend the virtual orientation this Tuesday! The event will be a casual forum where attendees can learn more about the conference and ask questions.

You may also attend if you are considering attending the conference but haven’t registered yet, or if you would like to come next year.

Click the button below to register.

Click Here to Register

SIBs Warm-Up

Wednesday, June 19 | 6:30 PM EDT

If you’re a Batten sibling, join our SIBs program this Wednesday for the SIBs Warm-Up! This virtual event is for SIBs to catch up and new SIBs to be introduced to the program before next month’s Annual Family Conference!

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Grief Chat

Sunday, June 23 | 7:00 PM EDT

The next BDSRA Grief Chat is scheduled for next Sunday, June 23, at 7 p.m. EDT.

Prior registration is required for newcomers. If you’ve already completed the Grief Chat form, you will receive an email reminder one week before and the day of the Grief Chat.

Click the button below for more information.

Click Here to Register

Last Chance For Batten Disease Awareness Day Donations!

WE’VE RAISED OVER $81,000!!!

We can’t thank you enough for your advocacy and for raising funds. We are accepting donations until 11:59 p.m. EDT Saturday. Send the link to your fundraising pages to your family, friends, neighbors, colleagues, community, etc.

Click the button below to donate!