Gather your pups and pals because it’s almost time for the 2nd Annual BDSRA Dog Days of Summer Party!

This virtual party will take place via Zoom on Sunday, August 11, at 4 PM EDT. FREE party kits are available for families to order during registration until 11:59 PM EDT on Sunday, July 28. Party kits are reserved for U.S. and Canadian families only.

Click the button below to register!

The BDSRA Foundation announced its Center of Excellence & Affiliate members and the formation of the Batten Disease Global Research Initiative during Saturday night’s Dinner Dance at the Annual Family Conference in St. Louis. This news marks a significant step forward for Batten disease family support and research.

So you just attended the BDSRA Annual Family Conference…what happens now? Browse our post-conference to-do list for conference attendees, and reach out if you have any questions! The deadline to complete surveys for the overall conference, SIBs and Life Goes On programs, and childcare is TODAY!

Click the button below to access the surveys and more!

Go behind the scenes of the 2024 Annual Family Conference in St. Louis with the official photo gallery by Ira Graham III Photography & Films!