THANK YOU to 10/11 News and News Channel Nebraska for spotlighting the BDSRA Annual Family Conference and local families affected by Batten disease! Watch/read their coverage below!
Batten Disease is a rare, fatal genetic disorder affecting children. The foundation that raises awareness for the condition is hosting its conference in Lincoln, which represents a big moment for local families like the Thoenes.
Full Story: https://t.co/2iBqr8fply pic.twitter.com/A49KbAnGJy
— News Channel Nebraska (@NewsChannelNE) July 11, 2025
