News – Page 23 – Batten Disease Support & Research Association

BDSRA Supports Newborn Screening in Ohio HB110

State Representative Scott Oelslager, Chair Ohio House Finance Committee Ohio [...]

By Morgan Deboth|2021-04-19T11:10:02-04:00April 19th, 2021|Advocacy|Comments Off

ABOUT THE CONFERENCE The BDSRA’s signature event each year [...]

By Morgan Deboth|2021-04-15T15:36:16-04:00April 15th, 2021|Latest News|Comments Off

Batten Families, Please consider joining us for our 1st [...]

By Morgan Deboth|2021-04-15T15:28:03-04:00April 15th, 2021|Latest News|Comments Off

To register visit: https://web.charityengine.net/IBAD2021

By Morgan Deboth|2021-04-14T11:48:36-04:00April 14th, 2021|Latest News|Comments Off

Your March Newsletter is Here!

By Morgan Deboth|2021-03-30T15:43:42-04:00March 30th, 2021|Latest News|Comments Off

Taysha Gene Therapies has recently released the attached letter on [...]

By Noreen Murphy|2021-03-03T11:50:34-05:00March 3rd, 2021|Clinical News, Latest News, Research News|Comments Off

Check out the February Illuminator!

By Noreen Murphy|2021-03-10T09:55:08-05:00February 26th, 2021|Latest News|Comments Off

WORLDSymposium 2021 February 8-12 basic, translational and clinical researchers, patient [...]

By Noreen Murphy|2021-02-26T19:51:05-05:00February 26th, 2021|Clinical News, Latest News, NCL Publications, Research News|Comments Off

Click here to see the Illuminator!

By Noreen Murphy|2021-02-26T21:28:04-05:00February 12th, 2021|Latest News|Comments Off

FOR IMMEDIATE RELEASE January 25, 2021 BDSRA SELECTS AMY FENTON [...]

By Noreen Murphy|2021-01-26T15:50:58-05:00January 26th, 2021|Latest News|Comments Off