BDSRA Welcomes New Board Members
The results are in! BDSRA held annual elections in November, [...]
StemCells, Inc. Announces Results of Long-Term Follow-Up Study in Batten Disease
Human Clinical Data Encompasses Five Years of Post-Transplant Safety NEWARK, [...]
BDSRA Receives Genzyme Patient Advocacy Leadership (PAL) Award
Genzyme Announces Winners of Patient Advocacy Leadership (PAL) Awards CAMBRIDGE, [...]
BioMarin Pharmaceutical Inc. launches first phase of study in Hamburg, Germany
We applaud BioMarin Pharmaceutical Inc. for the official start of [...]
September issue of our newsletter the Illuminator
Check out the new edition of BDSRA newsletter to get [...]
We appreciate and thank our conference sponsors!
Many thanks to all who attended, participated and contributed - [...]
$1M in Batten Disease Research Funding Awarded through BDSRA Research Funding Collaborative
$1M in Batten Disease Research Funding Awarded
BDSRA Has Moved!
The new BDSRA offices opened January 3, 2013. Our fresh [...]
Combination treatment in mice shows promise for fatal neurological disorder in kids
By Caroline Arbanas (March 15, 2012) Infants with Batten disease, [...]
Development of a Carrier Screening Test
A newly developed test could screen would-be parents for hundreds [...]
