The Summer issue of the Illuminator Newsletter
The Summer 2015 edition of the BDSRA newsletter is now [...]
University of Rochester CLN3 Research Study
Function and Quality of Life in Juvenile Neuronal Ceroid Lipofuscinosis [...]
The Spring issue of the Illuminator Newsletter
The Spring 2015 edition of the BDSRA newsletter is now [...]
CLN2 Enzyme Replacement Trial Opens First US Site
We are very happy to announce that the first United [...]
BDSRA Funds Crucial Project to Expand a Batten Disease Patient Registry
One of the most important steps toward finding effective medical [...]
Hope 4 Bridget Family Foundation Sees the Power of Partnership in Research and Finding a Cure
Bridget Kennicott was born on November 11, 2004, to proud [...]
Charlee Nelson Inspires Utah Legislation Named in Her Honor
For Catrina and Jeff Nelson, losing their 6-year-old daughter Charlee [...]
Columbus Clippers Deliver a Dream for Guest Announcer
Friday, July 25, 2014 was a memorable day for the [...]
International Partners Advance Batten Disease Research Targets
BDSRA, in collaboration with international and family foundation partners, has [...]
Grants and Patient Registry to Advance Batten Disease Research
Read more about the DEM-CHILD project that is a funding [...]
