Join us June 3rd and 4th as we raise awareness for Batten disease!   Each year, during the first weekend in June, the Batten Disease Support and Research Association celebrates Batten Awareness Weekend to promote the need for research and support for families.  This year we are celebrating 30 years of BDSRA by hosting a virtual 5K Run for Research.

It is just like any other 5K, except there is no official race location. The virtual part of this means no traveling and no early start times! It also means you get to choose where, with whom, and even how you want to complete the 5K.  This 5K can be done at any time and on either day during Awareness Weekend. It can even be done in increments throughout the course of the weekend. Keep track of your distance until you hit the 5K. If you haven’t registered for the Run for Research virtual 5K you can click here for more information and registration.

We’ve also created a few ways for you to promote Batten Awareness Weekend on your social media posts.  Be sure to use#battenawareness so that we can keep up with the fun.  And we’d love it if you would share these with your friends and family.

Batten Awareness Weekend FaceBook Profile Picture

Batten Awareness Weekend FaceBook Cover Picture

Batten Awareness Weekend FaceBook Poster (you can insert a picture on this one)